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Pleasant Pain: Fibromyalgia and the stress and strain of even the good times


It seems weird to say that pleasure can create pain, but it is true. In this case, the pleasure was a family visit. This missive is NOT to complain about them, as it has nothing to do with the family themselves … but rather to explain and hopefully prepare any readers who have FM for the events which likely will happen to them, due to otherwise good or  pleasant events.

My pleasant event … I had my Mother, Daughter, grand-kids here for a week ( as well as a few drop in’s by near by relatives ) Now, this meant trips out, go do things together, making meals for large numbers, total changes in sleep times, life cycles, etc. All for very nice reasons, and I enjoyed having them all around for the week … however FM makes NO distinction between body and mental stress brought on by good times.. or bad, which is my point here. 

In a word, I am paying for the visit in pain, just as I would if I had been through any other stressful demanding set of events.  And given as I was already IN a flare state due to recent surgery ( see prior post ) … I am double dipping here. However, that fact is almost to my benefit. As the body was already maxed out with a flare, so that adding a few more events, did not seem so bad 🙂

However, there were issues the surgery did not create, that the family visit … did. What are these reactions and why do they matter ?

Known VS unknown environments: This one is a combination of factors. When we are out and about, we lack control over the environment, temperature, light levels, exposure to chemicals, pollens, and more. This creates a large stress loop feedback to the body, that by and large we have NO control over. And with a family visit you are more likely to engage in such events.

( I was able to bow out of one of the planned activities  and rain canceled another, so things were not as hard as they could have been. But as we with FM know any trip out for any reason, can be draining  )

Dietary changes: In the normal course of our days, we can eat when we want, how we want etc. ( or rather we can to the extent our Gut permits us too ) If you have a houseful of guests however, their needs become paramount, which almost always means a change in your diet. If for no other reason than the time of day that you eat, will tend to change.

IBS: Which due to the diet changes and general stress, kicks off like so:

Abdominal cramping and pain, Diarrhea and/or constipation, Flatulence …which with a room full of guests can be a problem 😦 Bloating , Abdominal distention, Nausea.

Push Crash: Since you are acting as the host, even with family, you will tend to push yourself to keep up with the obligations that go with that state ( this is true, even if you do manage to bow out of some of the activities as I said above )

Sleep disruption: If  any of the guests stay in the house with you, then your entire sleep wake pattern can and likely will be disrupted. ( In fact, this is likely to be true, even if they sleep elsewhere, as their “day” will start sooner than yours over all, which will force you to cut your sleep hours short to accommodate them ) This creates sleep deprivation in either case.  Which causes problems like so:

Aching muscles, blurred vision, depression, drowsiness, decreased mental activity/concentration dizziness, fainting, confusion, hand tremors (  my dominate hand had the shakes so bad, I could barely hold my glass at one point ) Headache ( understatement say Migraine here ) hyperactivity, hypertension, irritability, memory lapses or loss, nausea.

Just to name a few

General flare: Which is where all issues above, pain etc, intensify. And to top it all off, I got a grand case of Laryngitis from talking so much.

All of the above and more are true.. even IF the family over all does understand what the term FM means and how it affects you for the simple fact, that even if they DO understand, no one who does not live with you, day in and day out, is going to be able to adjust their actions or moderate the demands their presence makes on you to any large degree. As it takes more than just “understanding what it means” what it takes is understanding what it means, for them regarding changing how they behave and the demands they make on you.

And these extra demands, started before they showed up. With extra shopping trips for food stuffs etc, more cleaning activities and the like, just to prepare for their visit.

Now, would I change a thing about any of it ? No, totally enjoyed it and would do it again in a heartbeat 🙂 But a word to the wise, even pleasant activities have a price, if you have FM and it is best to be prepared for the flare and other issues it will create.

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Fibro flares, letting the Dragon .. sleep


 
Most of us with FM, discover something rather interesting. That we seem to “get better” as time goes on. Almost all of us can say that we are not as bad off now, as we were years ago, when we were first diagnosed with FM.Now, this brings up several issues that need to be covered, not so much about ourselves, but often about how others feel about us and what they expect of us.

Acclimatization:

For most of us, the main reason we are “better” off is due to the simple fact we have learned, as time has gone on, how not to wake the dragon. Meaning we have learned to make changes in how we lead our lives, that let the dragon that is FM at least doze, if not sleep.

We have learned, not to overdo for example, even when we feel relatively well. This is frustrating and a hard one to learn, for the simple reason when we do have a “good” day, we tend to try and “make up” for all the things we let slide on the bad days.

This is a mistake however, as we just end up going down for another round of pain and misery. ( See Push crash, on site ) So we learn, once the Dragon is napping, not to walk over and kick it and wake it up again. There is a problem with this stance however, not so much for ourselves, but for others, friends, family and even our Doctors.

The medical society may note the improvement and often makes the mistake of thinking we are “better” and therefore, might cut back on the very medical support we may need to maintain that state of “better.” Our friends and family may take notice and start piling more things on our plate for us to do, and or, cut back on the things they were handling for us, since we “seem” to be better.

This is perfectly understandable, from their point of view, but it is a mistake for them to make the assumption that just because we have finally reached a point were we are not entirely miserable everyday, means that the FM has gone away. As it will certainly prove to us, the first time we try and push ourselves to do things that will wake it up.

Self Education:

We have learned what things help our symptoms and what makes them worse, when it comes to our diet, or sleeping patterns for example. We have learned what actions will demand a high price in pain and have figured out other ways to do them and or, we avoid doing them. Learning to live with FM is an on going process, of self education.

For each of us, that education is one of a kind, as none of us reacts the same way to all things. We cannot even be positive of the same reaction to our behaviors or actions, on any given day, as the daily limits, if you will, can change without notice with FM. They can change on us, day by day or even hour by hour.

This is tough one to figure out, as we have to recognize some very small signs. We tend to learn that we are poking the dragon and to stop doing whatever it is, so that it can doze on, rather than fully wake it up and have it start biting us. We become the best detectives of our own bodies and we can often learn to see even the small signs that tell us, stop doing X or we will wake the dragon.

Passing for normal:

We sometimes make the mistake of thinking, that just because we have somewhat tamed the beast, that we have bested it. This can lead to a very self delusional state called ( Passing for norma on site  ). A behavior of which anyone with a disability is familiar, as nearly all of us have tried it at some point.

This “put on” front, can make those around us more comfortable, as it presents them a “face” they can deal with. Which, while it might help others, it does little for us, besides keep the dragon of FM awake and lively for most of us.

Lack of understanding by others:

If we avoid the things that aggravate our FM and do not attempt to do more than is reasonable for our condition, we often can maintain a state of “better” provided however, that we keep right on NOT doing the things that will aggravate it. This is the state that is the most difficult for others to understand.

As we seem to be better, therefore, they assume we are better and their expectations of us, rise. This can lead to some serious problems when we try and explain that no, we cannot do …. fill in the blank …. action, despite the fact that to all appearances, we seem as if we should be perfectly able to do so.

This so called “appearance of normal” leads others, from family, to our doctor to believe we are “faking” the extent of our disablement, to avoid work or actions that we do not want to do. It can lead others to believe that we are just “lazy” or trying to shirk our responsibilities.

This unfortunate side effect can be the hardest hurdle of all for a person with FM. We have finally gotten to a point where we are not in intolerable pain every waking hour and society as a whole, suddenly wants us to tempt fate and behave “normal” again. And since we, if we are wise, we refuse to do so, we must be malingering, as we appear to be in “good” shape. ( You look fine, and why that is a lie, the face of FM on site )

Real Malingers:

By definition: “Malingering is a medical and psychological term that refers to an individual fabricating or exaggerating the symptoms of mental or physical disorders for a variety of motives, including getting financial compensation (often tied to fraud), avoiding work or military service, obtaining drugs, getting lighter criminal sentences, trying to get out of going to school, or simply to attract attention or sympathy. ” Wikipedia

So there are those who have a short term problem, that will heal, who will “milk” the disabled state, for as long as possible, even to the point doing hurtful things to themselves, to keep the “benefit” of being injured, coming. Now, anyone who deliberately extends a disabled state, when they have the option to be fully healed, has some serious maturity and mental issues, it goes almost without saying.

However, since there are people who do this and it is commonly known that there are such people, it is assumed that we with FM, fall into the same category. This is despite the fact that our FM is not yet able to be cured and appearances not withstanding, has NOT gone away

Catch 22:

Catch-22, describing a …. situation which presents the illusion of choice, while preventing any real choice..”

We with FM, find ourselves in what is called in America, a catch 22 situation, meaning … if we seem to be normal, we are expected to behave as if we are healed. Yet if we attempt to do such a thing, we will fall right back into the round of pain and perpetual flares, that we were experiencing at the time we were first diagnosed.

The reason we had so many flares then, is we did not know what we were doing that was setting them off, as we did not understand the disease. 

But, since we have learned to make the behavioral and other life style or dietary changes, ( as well as, one hopes, have the proper medical support ) that will allow the dragon to doze, we are damned for our very state of seeming to be near “normal.” And will often be pressured by our family and our doctors to act on that appearance, even though for the most part, that would be to our own self detriment.

So, do not allow your friends, family or your doctor, let your appearance fool them into thinking that everything is fine. You must explain to them, as often as is needed, that yes, you have found a state where your FM is more tolerable. But the only way to keep it that way, is to let the Dragon doze and for them not to try and make you do the things that will wake it up, as it is you, who will pay the price in pain.

Self defeating attitude:

To many, the prior statements are considered self defeating. Meaning, they will tell you that if you accept limits, that you have a self defeating mind set and will “never get better” or worse ” you don’t want to get better” or… you get the drift. The medical society is particularly bad at this, with their attempts to “normalize” us. To the medical world, anything not normal is deviant and needs “correction.”

This is despite the fact that they have yet to offer us anything that comes even close to curing FM. They cannot even agree on the causes of it. Yet we, as the person who has to suffer for overdoing it are expected to “push” ourselves at their command, take whatever drugs they hand us and just ” do what we are told.” It is yet another catch 22, medical style. There is often no good choice.

We are expected by almost everyone, from our family, to our doctor, to push, push push ourselves, whenever possible. Our failure to do so, at any opportunity, means to many, that we have “given up.” Never mind the fact, that we have simply found a balance point with FM, to create the least amount of pain and discomfort, as possible. 

My personal advice is … ignore well meaning friends, family and yes, even your doctor, if they attempt to force you back into the same condition you were in, before you understood what FM means and learned how, in some degree, to manage the illness. Let the dragon sleep.

The Anatomy of an FM flare


What it does to the body
The use of body resources, during a flare
and what can we do, to help ?

What happens, during the life event, we call a flare ? Well, first, let us look at it from a medical standpoint.

Flare: =”the sudden intensification of a disease.” Not saying much huh ? Alright then, it’s defiantly not enough for our purposes, so let’s look at it a bit deeper and see what it really means.

Fibromyalgia flare = Not so easy to define. As each persons experience with FM is different, ergo, their flares are going to be different, but we can try to at least list some things we all tend to have happen, during a flare.

Increase in pain
More sleep issues, often due to the pain
Deeper memory problems
Neuropathic issues
IBS is worse
GERD is worse
Blurred vision and more eye issues
Greater chest pain
TMJ issues
Profuse sweating
Irritability
Lethargy
Fatigue
Sensitives increase
and of course, the Fog got thicker, as the brain just took a hike

Now this is to name just a few … now, what do we tend to do, or moreover, can we do, during such a time ?

We of course, tend to take more of our medications, if we have any that help. We cut back on our activities, use all of the alternative means, ( heat, cold, massage etc. ) but quite honestly, the one thing we can do, that tends to help the most … is to sleep. Un-refreshing or not, sleep can be a major relief from an FM flare.

The main reason is that while we are asleep, we are making fewer demands on the body, so that it can now use the bodies resources, to tame the flare. Rather than use them all up, to try and let us do our day to day tasks, since we are up and about. Resources are finite on any given day when you have FM, but during a flare, they are almost nonexistent.

A little stroll here, through the inner workings of the body, to explain this.

What are body resources ?

Energy to rebuild, which are created by a variety of things. Lipids ( fats ), Carbs and Proteins. Most of which come from calories burned from food, which depends on a gut that is A: Processing things correctly and B: Passing the energy onto the blood stream. The O2, from the lungs which is, one hopes, passed into the blood stream, to activate all of the above. As all cells need oxygen just to live, much less to work. So, to DO anything at all, on any given day, a lot of things have to be in working order.

How we get energy from food:

“Our digestive and nervous systems facilitate the ingestion of food and contribute the enzymes that break down sugars and starches into glucose. The endocrine system contributes insulin which, along with glucose, is delivered to cell membranes via the circulatory system.

Once it is inside the cell some glucose gets converted to glycogen — a storage form of glucose — that acts as an energy reservoir. The rest is delivered to the batteries of the cell called mitochondria. Each microscopic mitochondrion contains hundreds of enzymes with highly specific tasks. As each enzyme does its work, a chemical reaction causes breaks in the chemical bonds of the glucose molecule producing a different glucose derivative until the original molecule has been fully degraded to the components from which it arose in the plant — carbon dioxide and water.

Whenever chemical bonds are broken, energy is released. The energy released as mitochondrial enzymes break up the chemical bonds in the glucose molecule that is used by the cell for two purposes. The first purpose is to do the primary business of that particular cell, whether it be movement, nerve conduction, hormone production or whatever. The second purpose is to nourish the genetic machinery of the cell (DNA), to keep its structure and function intact.”

“Carbohydrates one of the three building blocks of living things, the other two are proteins and fats …carbohydrates are broken down into very simple carbohydrates, mainly into glucose and fructose via digestive tract and then absorbed into bloodstream to cells.”

In simple language, the sun/sugar energy stored in the food we eat, is broken down and used for every cell in the body. Since we humans do not have leaves and the like, to gather this energy, directly. ( Just consider the visual on that one if we did ! It would give a whole new meaning, to getting a trim at the local hair salon. 🙂

O2 and the cells:

“Cellular processes require oxygen to burn the calories received from food. The general process that is used to transform food into energy is called respiration. This is the opposite of photosynthesis, where plants convert energy into sugar. Respiration does the reverse by changing sugar into energy.”

Which is the final breakdown at the cellular level, which swaps that energy for waste products, which we then expel via our outward breath for the carbon dioxide, the kidneys and liver handle the liquid and chemical left overs, and the solid matter is further processed by the bowels, then expelled. ( at least one hopes it is, as with IBS, one is never sure how that is going to work )

Understand however, that even on a normal day, we stand at what is called the “lactic” threshold, in our muscles. ( Which translates into, they are two cents off of total collapse, as if we were pumping iron all day ) and since our muscles comprise our major cellular mass, the body will find slim pickings in that area if it wants energy, along with, some major demands being made of the blood cells by those very same body parts.

( For which Mycoplasmic infection may well be to blame ) As according to studies on the effects of FM, the mitochondrial cells, which are the cells that contain the lipids, which make energy for muscle tissue to use, are being damaged, therefore the muscle cells themselves, are being damaged as a result.

So if the blood cells have to go hunting for energy, as the body has little to spare floating around in the blood stream, the cells of the muscles literally cannot, not even to help themselves, provide that energy. It’s like they are so tired, that food might be within reach, and they don’t even have enough energy, to lift “a cellular hand” to reach for it.

The idea of processing food correctly, is really put into question, as most of us have IBS as noted above, over 80% of us and we often stand at what is called “caloric exhaustion” at any given point, regardless of the diet we eat. So our digestive system, does not work well for energy processing either. Which is why the situation above, of there being little of free energy in the blood stream, happens in the first place.

Then of course the O2 exchange, which is vital to all of the cells in the body, is often compromised, as most of of us have shortness of breath, for a variety of reasons, from the mechanical ( the rib cage and chest muscles themselves do not move or work well and, that makes it hard to breathe ) and or have COPD or other issues. Even at a cellular level, we are shown to have poor oxidation of the cells, even when there is normal intake and exchange of air.

Which means, that even with all the air in the world to breathe, and a proper diet, the body still can be standing there, doing without, on a chronic basis. And when it is pushed too far and too hard, the signs of the disease increase and we have what is called a flare, creating an even greater demand, that the body often has little to no freely available resources, to try and fill.

That being the case, the body uses up what few resources are normally available, in very short order during a flare.

However, more is still needed just to function, so the body goes hunting for it, most often taking it from the bones, the teeth, hair, anywhere it can find things that it can convert into usable body resources, to repair the damage being done. In short, the body is basically feeding on itself during a flare.

This fact is why most of us have low density in our bones, often have poor teeth, straw like hair, thin brittle nails and damaged skin. It is also is why during such flares, every alarm bell we have, are all ringing at once. As the body is on full alert, doing some rather extraordinary things, just to try and minimize damage and allow for some functionality, but it is often stripping the body almost bare, to do it.

So the bottom line is, often the best thing we can do, to help the body along, and ease our own pain, and prevent as much damage as possible, is to feed the body as best we can and then sleep. Sleep and let the body do what it does best, which is heal what it can. Without us, making more demands on an already overtaxed system.

© 2013 all rights reserved

Known VS Unknown Environments and FM


Why we tend to stay home.  Isolation or control ?
I happened to hear a comment the other night on a movie about a blind man. It was his Mother telling his new girlfriend ” do not base his ability on what you see him do at home, in an environment he controls” And it rattled around in my brain, until I realized, just how that applies to us with FM.

A large number of us, prefer to stay at home … period. To the point where some of us, are downright agoraphobic. The line from the movie was not the first time I had seen this effect, in action. As I recall seeing the same effect, with those I used to teach.

I was a one on one life skills teacher for persons with Disabilities. I noticed, that when they were at home ( once they got used to the apartment ) they seemed to do pretty well. It was when I got them outside of that environment, that their over all state and general performance, suffered. Once they were used to certain stores and the like, their abilities improved, at least in that place. But if I took them somewhere they had never been, again, performance suffered.

So I had to ask myself, in what way does this apply to our tendency to be ” stay at homes” ? Now, it is a given that often times, we just don’t have the energy to face the chores in the outside world, that is nothing more than fact. But how much of our reluctance, is also due to the fact that we have NO control over that environment ?

Sensitives :

For example; If here at home, it is too hot or too cold, I can walk right over to the controls for the AC or heater and change that. I can strip down or dress warmer, in short, I have some direct control. But what if I am out and about ? Now, I am stuck in whatever I happen to be wearing, having to deal with often sudden shifts in temperature ( say from the AC in the car, to out in the heat to now back in the AC in the building ) and that’s just one aspect, the ambient temperature around us.

Light: Now I don’t know about you, but the horror of florescent lighting is enough to drive me about bonkers. Yet, such lighting is in most public buildings, or doctors offices. So yet another thing my body does not like and reacts rather badly to, that I have no control over. Not to mention, we do not do very well in bright sunlight either.

Rest to action phases: Now, at home, if I need to rest, I can just stop whatever it is I am doing on most days and go lay on the sofa and watch TV or read a book. I can even go take a nap if i want. When I am out ? None of those things apply.

Smells: At home, we can to a high degree, control what we smell. Outside and going about, we have little to no control over the major assault on our senses from all manner of things, from the detergent aisle at the grocery store, to the woman sitting next to us on the bus, who bathed in her perfume. Let us not even get into the nasal assault we suffer when walking into any doctors environment.

Noise: Now this one I know for a fact is an issue, as I wear an MP3 player around my neck with ear clamp headphones, literally everywhere I go, to block out the noise all around me. As any failure to do so and I come home even more wiped out, than if i didn’t block it all out. And again, in my own home, most of the time, unless the TV is on, which is rare … the only noise is the AC running, as total quite is preferred. ( Which is why noisy neighbors about drive me crazy )

Desensitization or over excitation:

Now some might say, we are creating our own problem by exercising such strong control over our home environment, as it does not prepare us for the assault on the body in the outside world. And in my personal case, they might even have a point. As in my current situation, I have almost total control over most aspects of my home environment, but what about those of us who have a house full of kids, husbands, wives, pets etc ? Granted, even they have some greater control over their personal space, but not nearly so much as I do … yet… they suffer the same issues as I do, when they go out and about.

So what are we really dealing with here ? A case of, we shelter ourselves and therefore suffer more when we go out, or a case of we would suffer even more, if we did NOT control our personal environment, as then we would have NO respite from it ?

Even in most of the rules, regarding persons with disabilities, there is always a clause stating that they should have in all cases, where possible, the”least restrictive environment .” In fact, in persons with the more common disabilities, there are major protocols in place to reduce the distress of the shift from a controlled to a non controlled environment. A read of the research shows clearly that you can find notations to health professionals, in plenty for just about everybody.. except us. Now, granted, the more severe the disablement, the more complex the protocols, but to my way of thinking, perhaps there needs to be some created for us.

For example: At the doctors office, less bright lights if you please, which makes it a need to….Lose the waiting around for hours in crowded noisy waiting rooms, put us in a private room to wait, with dimmer lights. Let us sit with our feet up if we need to, as for most of us the forced legs down position for hours means, we will fall down when we go to get up.

Simplified forms to fill out or have the nurse just ask the questions and fill it out for us
Bring us warmed blankets, if we have to wait, so we don’t get chilled, as most doctors offices are like refrigerators.

Just these things alone, would make what can be a horror of pain and distress, a typical visit to a doctors office, into something a lot more comfortable to endure. And I think it is high time, we started asking for them.

More soon….

© 2013 all rights reserved

Trying to get back to “normal” or at least as normal as it gets with FM


Well, things are half way back to normal in the sleep department, I say half way, as I am basically making myself get up at my usual hour, no matter if I have had enough sleep or not. Which I hate to do, but I really do not see as I have much choice here. I cannot just sleep the entire day away, when I have things to do. Warning… on a rant roll tonight, so just bear with me.

It’s already bad enough, that most nights my Mate and I, almost swap places in the bed, as I am no more than getting in it and getting half way to sleep, when he is getting out, but to miss him entirely for whole the day too ! Unacceptable. So no matter the cost, this sleep all day, has got to stop.

Even if it does mean, that half of the time my brain is fried, and my memory has gone completely to hell here. Everything that needs doing, MUST be done.. right now or it is not gonna happen. As mentally, I am running on empty here.

Now, if all that were not enough, I have a brand new issue. Does anyone else have tongue or mouth problems with FM ? For the past month and half and more now, my whole mouth feels like it’s sore. My tongue is literally cracked right down the middle, and has sores on the edges. Like I have been chewing on it, which is totally impossible, as other than to eat, ( which has been a trick lately as it hurts to eat most things right now ) I do not even wear my lower plate, I have not for years.

This is one of the issues I wanted to talk to my doctor about, you know the office that gave me an appointment, for Oct, when the last time I saw the woman, was in June ! And I told them why I wanted to see her, when I called.

And the glands under my arms hurt like all get out, every time my arms are down, you can literally see some swelling in some places. It all seems to scream some kind of immune system malfunction to me, but as to what could be creating it, or if that is even whats going on here, I have not a clue.

But such weirdness can happen with FM, as our immune system is most often going full bore, or you basically have none there is no middle ground here… and this, given all else that is going on, just might be the result of one of those times, that I really do not have much of an immune system, and the stuff showing up, is the result, but this could be something else, altogether, so I cannot just shrug it off.

Just because we have FM does not mean we cannot have something totally unrelated to it, going on too ! FM does not give us any immunity from coming down with other stuff, on top of FM. Is is hard to remember that, when FM alone brings in so many things that can go wrong here.. but any thing new, HAS to be investigated.

The back, legs and neck are still a mess and I have just about given up on the idea of a Chiropractor, as the fight to get the service, is just about too much. It doesn’t do me a whole lot of good, to add to my stress levels, just trying to fight my HMO over it, so I am gonna try for at least a PT as that, they might be more reasonable about.

Not to mention, the ears are both still acting up and still no ENT appointment.. as of yet anyway and I even put in that dang request, in writing ….well over a mt ago !

Sigh, some days, I just do not have the energy, to handle it all, and ride herd on my doctors entire medical staff, many of whom, are not doing their dang jobs !

Gonna have a word with Doc on all of that, as I am positive no one asked her if she thought she should see me sooner for all of this. The one I  seem to keep getting on the phone in her office, can barely speak English, so it’s a sure bet she doesn’t understand it all that well either !

To me, anyone who cannot speak English here in America, has no damn business answering a phone in a professional capacity ! Particularly, not in a Doctors office.

I think from now on, if I hear that voice, I will automatically ask for someone else, as I am getting dang tired of her mis-handling things, likely due to her own incomprehension of the language, both spoken and written, as she does not seem to get what shes reading, either.

Well, that’s enough whinge for one night, I am tired and need to at least lay down.. so good night all and may your rest be blessed

BB

Esta

Sleep still messed up with FMS


Okay, now this is just getting too weird. Went to bed at my usual time, was even starting to doze laying there, which is normally a good indication that sleep is possible. Not last night, I was up and down no less than 3 times. As I make it a rule, if I have been in bed for more than half an hour and still not asleep.. I get up. I was still up, when the mate got up at, past 9 am. This is about to drive me, insane.

To bed at 9ish am and up at 5pm is just not gonna cut it. As the mate so pointedly reminded me.. if it keeps on like this, if I happen to get an appointment for damn near any part of the day right now, I would be hard pressed to keep it. Hell, as stands, my entire dang day is gone… before I even get outta bed !

I do not have any until next mt, as the moment, but one never knows.  As there are several I want to have and have been pressing for that I would be very pissed if I finally got them, only to miss them as my body has gone  entirely off the deep end here, with the sleep thing.

Doctor is just gonna have to listen and pay heed, and give me some real sleeping meds for days like this, like I asked her for.. ( which when I asked last time, she gave me yet more anit depressants, which did make me sleep, right enough..for about 2 hours, then the nightmares started, several days in a row…. so in the trash they went ) This cannot continue!!!

Welcome to my not so dream land

BB

Esta

The long sleep insomnia and FMS


Well, I guess my body had had enough of this up all night bit, and I slept for almost 12 hours. In fact, the only reason my mate woke me, is I was getting behind on my meds. It has been a long time since the body has just said “okay, enough of this no sleep.. watch this” !

This is not the first time this has happened, but what surprises  me, is that it does not happen, more often. As one would think, that if the body is sleep deprived enough, it would do this, almost automatically, yet, it does not.

Now most people have experienced this, long sleep, at least a few times in their lives, often right after a period of prolonged energy drain. But it is in fact, yet another form of insomnia. As weird as it sounds.

Yet, such prolonged sleep does not bring the rest one would expect. In fact, it often brings a feeling of a slow brain, body and a general malaise, which has no real connection, except to the excessive amount of down time.

My mate often complains of this almost horrid feeling, if he has “slept too long”.

“Too much sleep can weaken your sleep system. Your body is not awake for long enough to absorb enough sunlight, get enough exercise or engage in enough tiring activities.

Your body temperature takes a long time to climb to normal in the morning making you very drowsy for several hours after waking. In fact your body temperature may not climb to its peak at all, so you may feel lethargic all day. This is because excess melatonin that has been released by keeping your eyes closed for a long time does not dissipate quickly leaving you feeling drowsy and drained of energy.

Too much sleep can actually weaken your immune system leading to lowered resistance to colds, flu or worse.”  Link