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Recovery time and FMS


Another laundry day ugh, but one of those gotta do sorta things. It always amazes me how tired you can get, from just doing one thing. But with FM, this should not really come as a surprise.

In point of fact, I did several things. But all of that just added to the load the body is already under on any given day of the week. How that looks is like this :

Lactic acid build up in the muscles as we are at the “threshold” just sitting there, much less makng demands on the body.

Caloric exhaustion. Which is just a fancy medical term for the body is starving. This is regardless of diet. IBS and a whole host of other issues create this problem

Homeostasis is shot:  Which is just another fancy medical word for all systems working normally and within certain parameters, body temperature, etc. Now for us, the body cannot adapt fast enough, to extremes of heat or cold. So being outside in our Texas summer or worse and the conditions in the Landry-mat to that and you have a body that is way overworked here. Add to that of course, dehydration.

What it all means in toto ? Is that when you ask the body to go out and do such work, under such conditions, it takes all you have, literally, to do it and then comes the recovery time.

I came home about 3 hours ago, and I am just now getting to where I feel even remotely, normal ( or at least as normal as we with FM, ever get ) In other words, it took me just as long to even start to recover from the labor I did today, as it took to do it, at all.

Welcome to my world

BB

Esta

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The worst kind of flare and FMS


Well, I made about a million phone calls, and got my car back from the shop. Yeah ! So a few things going right for the day. Tonight we have ritual, for Mid summer, and for the first time in a long time, I need it. It has been a pretty stressed out few weeks. Flare from hell going on.

Tired, does not even begin to cover how I feel right now. It is like someone staked me out under our hot Texas sun and let me bake for a week. Crisp fried to a crackly crunch. As far as my nerves go anyway. I have not had the shakes, in a long time.

Now, those of us with FM, know exactly what I am talking about, but for those of you who don’t, what that means, is the system is so overloaded that: Noise makes you jump, lights stab your eyes, your hands and limbs literally shake, when you try to use them. A mouth like sandpaper, skin so sensitive, that even the wind blowing on it, makes your nerves  jump. Muscles under the skin do this little dance, for no good reason … and all of the tingling, crawling sensations it’s possible to have. And of course, the pain is way over magnified too.

Now the why of all of this is simple, its the nervous system, gone completely haywire, over amplifying  signals all over the place, to where nothing is being felt even close to normal ( or at least, as normal as it gets for us with FM ), as its all in major overdrive. It is the worst kind of flare one can have and I am in it. With little to do, but grit my teeth and hang on, until it passes.

The pain all of this brings, thankfully, I can at least tone down, even if I cannot get rid of it entirely, as my doctor finally gave me some real painkillers, wimpy though they maybe. I take two of them at once, as one at a time every 8 hours, doesn’t even put a dent in it ! But I behave, and only take two in any given day, which is just what she allows for.

So taking it as easy as I can on myself here, which is not saying much, as there is a lot to do, and I will just try and hang together long enough, to see the things done, without working myself right into my bed.

Actually bed sounds good, right about now… but “things to do and people to see” as the saying goes, so will have forgo that..for now.

More soon..

Esta

External stress, overload and FMS


I feel beat, busted and generally, infuriated, and trying hard to just, chill out. As I know full well, I am not helping myself here. But, let’s face it, sometimes life hands us things, that would piss off the Good Humor man ! Today was one of those days. We with FM, do not deal with overload, very well. That said, and more on it further down, a peek into my day. Pardon me while I vent a moment.

My car has been acting up pretty bad and I put it in the shop. Now some 6 mts ago, I had the front tires replaced, and a new ( to me anyway) rim put on, as the old one was bent.( With the pot holes we have here in Texas, no surprise ) But anyway, so replaced rim, that should have been the end of it, right ?

No such luck. When my mechanic got into the front end work a few days ago, he found that half the spindles the lug nuts go on, were broken ( including one they had recently replaced) and that both rims, were broken. Not only that, he found that the rim I had replaced, was the wrong size for my car.

Now, understand, I was back in that tire shop, no less than 5 times after getting the rim, as the tire would not hold air and the slight shake in the front, that started when they put it on, just got worse over time. Which they insisted, was not their doing, and had nothing to do with their parts.

My car man, who does all my car work ( but does not do tires ) is such a blessing, as he went out of his way, and took time out of a very busy shop, and came with me, to confront the person who sold me this rim. He even had his people, come to my house and get me.

He did his best, with his fellow shop owner and long story short, he was NOT impressed with the other shop owners behavior. I will not say what he really said, but let’s just say it was rude, and let it go at that. I could not follow it all, as they all spoke Spanish. But I know in general, what was being said.

So now, the entire front end tie rod ends, have to be replaced. Which I cannot lay at the tire stores door, as much as I would like to, As I was told of this problem, some time ago.

I am real suspicious of the fact that it started to “show “problems AFTER they got their hands on it, but cannot stay for certain, they created them. But their error’s did not help matters, and accelerated it into a major problem, long before it needed to be, that I can say, and have it be a fact I can be positive of.

Their error’s were A: the rim was the wrong size for the car, as I said. And the man who took it on and off, umpteen times, really loves his air wrench, as in grind, every time he put it back on. This despite me telling him over and over, don’t DO that. Not to mention, I have my doubts on how well he can use a tire machine, as if you do it wrong, you can mess up a perfectly good rim.

Now, as if all of this were not enough, the owner of the tire shop, seemed bound and determined to try and sell me a set of brand new rims, for a $100.00 bucks no less ( credit on the old used rim and normal price on the other new one ) I told him no way, I could not afford that.

( Not to mention, those used rims they all sell, are pure profit, as they cost them zero, as they are traded in when someone buys new rims, so he had already made money on it from me. Then had the gall to act like he was being generous, in that he would “credit” me the money I already paid him. In short, he was giving me almost nothing with that deal, he was just trying to make another $65 bucks off of me. The grand total of his so called discount ? $ 15.00 bucks ! )

To my mind, he owed me both rims, and the price of the spindles, at the very least. As the rim on the other side, should not have broken, and likely would not have, if not for his man’s mistake of putting one on the other side, that was the wrong size, making the whole thing, shake.

So, he finds yet another used rim and replaces the one I bought, for free as he said, which it was not, as I had already paid for it,( which I will have to keep a sharp eye on, as I no longer trust them ) and then has the nerve to tell me, that “sorry, don’t have another one for the other side, but you can still have the deal on two new ones for $100.00”

He told me this, after my car man left, as that was not how I understood things, while my car man was still there. So he was trying hard to cover his own mistakes,  and to make sure I never came back in again with rim problems. I can appreciate that from his point of view, but to try and make a profit on me, again, besides ? Can you say, rip off ? !

Now by this time, I am ready to spit nails. As this man, whose employee, totally messed up with the first rim I bought, aggravated, if not outright caused the front end problem ( to the tune of $300.00 + for repairs ) and then he DARES try and get me to pay for new rims !

No offer to even pay for the broken spindles, no offer for even token help with the price of the damages done. Never mind the fact that me running around with the tires in that condition, they could have literally, flow off the car, at any time, risking my life and anyone around me.

Which, if I wanted to press the matter, might be a good case for a lawsuit. I thank all the Gods for watching over my little car, that such an event, did not happen,

Well, by this time I had had enough of dealing with this man. I said to him, put the old one back on, I am leaving and you will never see my face again, while inside I am thinking ( insert many nasty words here ) and left, for a tire shop across the street I had dealt with before.

They remembered me and even gave me a good deal on a decent rim and made very sure it fit right, before they put it on. They even balanced it and all, for free for me. Thank the Gods for “Good” business persons 🙂  as I really needed that just then.

What this has done to my FM:

Now mind you, this was after getting almost nothing for sleep the day before, and a very busy day ( see my last post before this one, for details on why )  so I am wiped, flared, and felt like general crap, as soon as I opened my eyes this morning. It is over 105 degrees out there to boot, and I am having to deal with all of this!

I feel like they put ME under the car and used my head for the tire jack. Home now and feeling a little better, re hydrated, some pain killers taken and telling them to “hurry up”. But my point is, not to just tell you of a dreadful day, but to point out just how easy it is, to get into a major overload with FM, just in day to day living.

As these things happen. It’s hardly the first unethical business I have ever run across and I will take the proper steps, report them to the BBB, things like that, but the stress my body was already under for lack of sleep, spent all day at the clinic getting tests done etc the day before, now being combined with major emotional stress, and a body that was trying, desperately, to adapt to heat that is the highest yet, this summer. I am in a massive flare.

We with FM, just cannot deal with too many stressful things, at once. I was already stressed over having to put yet more money in the car, in the first place.

Our bodies, are already under massive body stress, on any given day of the week. Then I made the mistake, and I will admit it was a mistake, to let the Tire shop man, upset me.

What does emotional stress do to us ?:

Taking  just the body effects, they look like this…

Frequent headaches, jaw clenching or pain

Gritting, grinding teeth

Stuttering or stammering

Tremors, trembling of lips, hands

Neck ache, back pain, muscle spasms

Light headedness, faintness, dizziness

Frequent blushing, sweating

Cold or sweaty hands, feet

Dry mouth, problems swallowing

Frequent colds, infections, herpes sores

Rashes, itching, hives, “goose bumps”

Unexplained “allergy”attacks

Heartburn, stomach pain, nausea

Excess belching, flatulence

Constipation, diarrhea

Difficulty breathing, sighing   

Chest pain, palpitations

Frequent urination

Increased anger, frustration, hostility

Depression, frequent or wild mood swing

And that is just some of them. So no, we can ill afford, to allow external events, stress us out, no matter what the provocation is. Now, do we all do this ? Sure, but realize what it will do to yourself, and back up and back off, as soon as you get your wits about you, and you will fare better, over all.

More soon..

BB

Esta

Dehydration and FMS


Well, I was able to get up, just shortly after the alarm went off, unfortunately, it’s Sunday ! Oh well, can’t win em all. Able to get some work done too ( Money is always good) The heat however, is trying to murder me and my plants, all at the same time.

I cannot seem to keep either them, or me, hydrated. Dehydration is a serious issue for anyone, and most certainly, for us with FM. Which in my case, also plays merry hell with my Neurally Mediated Hypotension. Dehydration makes everything we have, worse, for example:

 NMH =Neurally Mediated Hypotension

A higher tendency to depression

Excess body weight ( while that sounds odd, as you would expect the reverse, but it is true. )

High blood pressure

Fatigue

Low back and neck pain 

Higher body temperature over all ( which of course doesn’t help us at all )

and of course, headaches

Dehydration also depletes the neurotransmitter serotonin. Reduced serotonin, as we all know, means insomnia, increased pain and sometimes depression, as well as most of the other “goodies” that go along with FM are also increased, so needless to say, lack of fluids is a bad idea, for any of us.

They say you can tell how bad someones FM is, by the size of their drinking glass. Well given mine is a 32 oz that is literally never empty, I guess that tells you how bad off I am 🙂 And I live with a lip balm within reach at all times. If I don’t have one in constant use, the lips crack and bleed, in short order.

Now, what I did find out, is that in my case it’s the vasovagal response ( Which the short version in English means, our BP is supposed to go up when we stand, mine doesn’t, it goes down as heart gets the wrong message, and you either get dizzy or pass out, for lack of blood flow to the brain ) that is responsible for my NMH, ( which is the name given to a disorder of the above vasovagal response ) and  it is part of the problem.

As it not only makes for low fluid in the mouth, eyes, skin,( as is common  in FM alone )  it also means the inner body cavities do not have the full amounts of fluid they need. Meaning  my innards, instead of sliding over each other, as they should, are more likely to drag and even stick at times.

This might explain why I get the dreaded ” pin in the Voodo doll” pains from time to time. Now as I said, the glass is never empty, but how the body handles the fluids, is just as important as getting enough of them, which means, the gut has to process them, correctly. Mine doesn’t. As I have rampant IBS. So it is compromised, from the start.

So tossing down more drink and hope I can keep up with it, in our hot, humid Texas Summer.

More soon…

BB

Esta