Tag Archive | aliments

Things to avoid, when you have Fibromyalgia


There many things we with FM, as a group, have discovered, that are things to avoid doing, or in some cases, eating or drinking. Mind you, most of these are what is called “anecdotal evidence”, meaning, it is generally only we with FM, that are saying so. But, enough of us have found these things to be true in life, so I present them here, take them as you will. Furthermore, we have said such things often enough, that some of them, have even been studied, and thus far, the studies seem to equal our self reports.

I do not intend to harp, as most doctors tend to, on your diet, (on site) and all that, as most research has found that to be pretty irrelevant, unless you have a food allergy, just eat a sensible diet and let it go at that. But, there are some things that many FMers world wide, have made note of, that tend to kick off a flare, as well as the “official” ones. So here they are, some things to consider. 


Aspartame: 
This is the stuff found in most diet drinks, and many other things that are artificially sweetened. It is bad news, for anyone, but it is especially bad for FMers, for all the effects it creates, as it acts like a neurotransmitter, and literally, by all accounts, destroys neurons. Nearly everyone who makes note of it, says the same thing, in that it can set off a flare, almost right now. A fast read of the research on it, will tell you why this happens, so, lack of studies or not, we with FM, know it’s a problem for us, almost universally. So, if at all possible, it is highly suggested, that you do not eat or drink anything with Aspartame in it. This will mean quite a bit of label checking, as it’s common additive.

( Update: This has been recently stuided by the way and yeah… we were right. For FM and a whole host of other dieases, aspartame, is bad news )

MSG: monosodium glutamate 
Lots of people report that they flare up after eating at their favorite Asian food restaurant. So make a point to ask that whatever they give you, has no MSG in it, just to be on the safe side.

Artificial fats: 
Yet another group, that gets a large finger pointed at it. There are a whole variety of these are on the market. Why they cause a flare is unknown, ( it is assumed it is due to the chemicals used in them ) but sufficient numbers of people report it, to merit being including here.

Air-conditioning: 
A movie theater, or restaurant, at work, at home, will often bring on an acute flare. Your muscles get chilled, and tense up, which sets up a cycle of pain, causes tension, causes pain. AC air is generally too cold and is damp to boot as many of us have arthritis as a primary. And as any arthritis sufferer can tell you, cold damp air, causes arthritic pain, which the FM, then amplifies. So if you must be or choose to be in such a place, dress for it. If you have any say over the settings, turn it up, the objective is to make the room temperature comfortable, not cold.

Static positions: 
Working in one place with arms suspended above the work surface, ( typical office or computer set up here, the same with most kitchens, factory or restaurant work etc. ) repetitive activities, and remaining in one position for a long time, be it sitting, standing, or driving.

(Move, vary it up, get up and walk, get out of the car, change what your doing to another action, so a different muscle group is used etc. and you will suffer less. )

Over exertion: 
The ever popular Push-Crash (on site ), it’s such big a deal, it has its own page.

Over stimulation: 
Too much of anything, light, noise, smells, in short, sensory overload. This means, send someone else down the detergent aisle to get the laundry soap, ban heavy chemicals ( most household cleaners, fabric softeners, and air fresheners can be culprits ) and many perfumes ( natural perfumes don’t seem to have this effect oddly enough, ergo, it’s likely a chemical reaction, to the artificial ingredients the other perfume is made of, rather than an olfactory reaction to the smell itself ). This includes things to eat or drink, like too much caffeine, or sugar, the key word is, moderation in all things.

Lights: Wear shades in the house until your eyes adjust when you get up in the morning ( no, I am not kidding, I just took to doing this recently, when I first get up, and it has cut down on the morning headaches considerably ) Noise factors, inside your own home, make some rules about it and make them stick. Outside the home, wear ear plugs if need be. Call down the cops on the noisy neighbors, whatever it takes. ( see Sensitivities on site )

Multi tasking: 
Which is a sub set of over stimulation. Trying to do too many things, at once. Do one thing at a time.

Weather changes: 
Sensitivity to cold, damp, humidity, heat, approaching storms (barometric pressure changes), temperature extremes, and change of seasons. You cannot control nature, but you can realize that you are likely to flare more often, given these conditions and take steps to try and minimize the flare by backing off of your activities.

Alcohol: 
Many report flares due to drinking even moderate amounts of alcohol. This is assumed to be due to the dehydration that tends to occur when one consumes alcohol. If you opt to drink, be certain to drink lots of normal fluids, at the same time.

Over-the-head activity: 
This can be over hand swimming, wall painting, cleaning out the cupboards … etc. In short, almost anything that puts your arms over your head repeatedly. If at all possible, avoid these actions, entirely.

Untreated Physical trauma: 
Even “minor” injury, can create a flare, so treat all injuries, even the little dings and cuts, promptly. This includes treating bruising, which we tend to get often, due the “drunken” walk many FMers have. This is when the legs, knees and hips are not holding up, or they are not getting the brains message properly, and they make us bash into things.

Untreated Infections and secondary illnesses: 
It stands to reason that if you come down with a cold, flu, have a yeast infection, etc. you are going to flare more often, so treat any secondary illness, seriously.

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New medications, the trials and tribulations and FM


Goddess help me. I HATE trying new meds. I look at them with all the trepidation of a ticking bomb.  ENT give me no less than three of em. Now I have the good sense not to start all three at once.. the first one wasn’t so bad.. minor body rush for a few moments…. a wee bit of tired ( it’s supposed to be taken at night, so no harm there ) and it does seem to help a bit for what its for. Ok. so far so good, kept that up a few days.. same results.  Medication accepted.

So today I try med number two…… and ugh… Ever try those really rough OTC anit histamines ? The ones that make you shake like a tree in the wind ? The ones that just wipe your brain ?

This one is just like that times 3-4. and so far.. it has almost every so called “Minor” side effect the thing says it might have, and a few not ON the list to boot.. at this rate, I might even be allergic to it.. but not sure on that yet.. all I know is I feel crappy. Monitoring the reactions and will take whatever steps needed. But off hand I would say this one is a NOT !

It makes me doubly suspicious, to even look at number three that I have yet to try and what’s funny.. this one that I just did a while ago..was NOT the one my pharmacy had doubts about. Let’s just say it makes me real leery about the one he DID have doubts about to where I might not even try it… at all. And have him tell my doctor that nix on both the sprays.

And whats worse, Doctors, over all anyway, do not seem to understand this hesitance to try new stuff. They act like any side effects are just something to be endured.

Well news, when you have Fibromyalgia and a half a dozen other aliments, that already make you feel like crap.. you do not feel that adding further discomforts.. for perhaps little gain, is bloody worth it.

As the effects are additive. This one might cause headache, thanks.. I already have them quite enough as it is.. without courting more. This one says do not take pain meds with it.. it’s called HELLO.. your telling me I have to choose between a stuffy nose or be in pain for the day ? Pain that the medication itself… is causing ?

This one causes diarrhea….it’s called again, thanks a heap. I already have that problem and I do not need it aggravated. This one says will be worse with muscle relaxants.. which I take daily. Are you seeing the trend here ?  

Do Docs even read or understand the possible effects of the meds they hand out ? Or do they just see how it might help the one thing they are focused on ?

Whatever happened to holistic healing ? As in take all factors into account and deal with the entire person and the side effects to benefits ratio of all of your medications.. combined ?

I am willing to bet they don’t stop to think about that very much. But WE have to, as we are the ones taking everything, combined and their combined effects are what matter here.

Sigh.. hoping that perhaps this one won’t send me to ER AGAIN ! But am holding out judgement on that, until I feel normal again.

When will Health personal get it.. that you have to take all effects into account for the over all well being of the client ? 

Think a few good thoughts for me that these effects go away in a little while with nothing more to show for it, than a crappy day, which I have NO intention of repeating.

BB

Esta